Please read the description and summary of steps below to help you to complete the De-Identified Data Sharing Request Form.
Download the Data Sharing Request Form
De-identified data collected in the BHR may be shared with qualified investigators. Collaborators may request a dataset that includes questionnaire data (self-report and study partner- report data on health, lifestyle, demographics, etc.), as well as cognitive assessment data obtained from 3rd party vendors. It is required for the collaborator to obtain approval from the 3rd party vendors (Cogstate, Lumos, MemTrax LLC, Cambridge Cognition) prior to receiving cognitive assessment data. BHR staff can help to facilitate the initial conversation with 3rd party vendors and provide contact information if needed.
De-identified data sharing collaborations with investigators outside of the BHR research group will be governed by a Data Use Agreement. The Data Use Agreement requires that the collaborator agrees to terms including but not limited to the following: (1) will not attempt to establish the identity of, or contact any BHR participants; (2) will not further disclose these data beyond the uses outlined in the agreement; (3) will require anyone who utilizes these data, or anyone with whom they share these data within their group, to comply with the data use agreement; and (4) will comply with any rules and regulations imposed by their institution and its IRB in requesting these data.
Download PDF of DUA template