Skip to main content

Why It Matters

The biggest obstacles to finding treatments for brain disorders may be the costs and time involved in clinical trials – and the Brain Health Registry directly addresses those challenges

Your Participation Makes The Difference

Faster clinical trials

We are building a large pool of potential participants in clinical trials. The brain tests and questionnaires can help identify those that might benefit from potential diagnostic tools or therapies. This pre-screened applicant pool can take years off trials!

Better clinical trials

If clinical trials enroll participants from our Registry, the scientific team may be able to see changes in brain functioning that occurred before the trial began. This longitudinal data makes for better research – and that gets us closer to discovering treatments.

More innovation

When trials are faster, better and less expensive, investigators can test more theories and try new therapeutic approaches. The prospects for breakthrough innovation increase – and that’s exactly what we need.

Someone you know has been touched in some way by brain disorders. The impacts are everywhere:

0
Americans have Parkinson's
0
American adults have PTSD in any given year
0
Americans have Alzheimer's
0
Traumatic Brain Injuries occur annually in the U.S.

1 MILLION

U.S. costs for Alzheimer's care

1 IN 3

American seniors die with Alzheimer's or another form of dementia

17.5 BILLION

Hours of work done annually by unpaid caregivers, most of them family members

TENS OF MILLIONS

Suffer from depression, sleep disorder, ADHD and other brain ailments

Personal Motivations

African Americans, who are underrepresented in many health studies, will be able to be represented properly. We can possibly find treatments for Alzheimer's, which affects the African American community disproportionately.

Bernadette WaddellBrain Health Registry Participant

When I need a car repair, I go to the mechanic; when I need a haircut, I go to the barber. We have scientists and researchers who have gone to school and worked in Alzheimer’s research for 20 years. They are the experts and I trust in their research.

Philip GriffinBrain Health Registry Participant

You can sign up for the Brain Health Registry online. It's quick, simple, and easy. Then you'll fill out questionnaires about your health, your family, and health history. Periodically, you'll be sent emails to continue your participation. Recently, I just did an update!

Sam SanchezBrain Health Registry Participant

I joined BHR when my mother was diagnosed with dementia. It was a long journey from diagnosis, to doctor visits, to caregiving to Alzheimer's Disease running its course. Treatment options were limited. Watching Mom, I realized the brain's significant role in all areas of health and aging. And I learned that loss of thinking and remembering abilities is not average. I met many people along the way who also had personal stories about memory decline in their own families. In order to help researchers find better diagnosis tools and get us closer to a cure, everyone who is able to join BHR certainly should.

Regene P. RossCommunications Manager, Brain Health Registry

I became involved with CEDAR as a result of an email that I received. It sparked my attention greatly due to a large family history of Alzheimer's and Dementia. It was simple, once I received the email it directed me to answer a few questions (5-7 minutes tops). You'll find that it's gratifying to know that you're doing something to not only help yourself but your family and your country. It was a great thing to do.

CeCe CypressBrain Health Registry Participant

It’s been two years since my mom died while suffering from Alzheimer’s. I think about her every day. Participating in the Brain Health Registry is a way for me to honor her. It’s something I can do that’s real and tangible.

John FitzpatrickBrain Health Registry Participant

PTSD doesn't have to break apart families or end lives, but it often does. Veterans like my dad who go into a war zone and come out with a devastating disorder deserve new and better treatments to help them live normal, happy and fulfilling lives. I am honored to take part in the Brain Health Registry so I might help those who have put themselves at risk in service to the nation.

Roxanna SmithBrain Health Registry Participant

My godfather has Parkinson’s. He’s a priest, and the disease is taking away his ability to preach. I signed up with him in mind. If, in the long run, this can help save and empower voices like his, it will be a great thing. And I’d like to be a part of it.

Theresa WalshBrain Health Registry Participant

I’ve seen the impact of Alzheimer’s – I’ve had friends who have lost loved ones, and the toll is immense. So I see it as a privilege to help with medical research. I feel like this is a way I can pay it forward to future generations, including my own children.

Jackie BobergBrain Health Registry Participant

There are many reasons why I'm participating in the Brain Health Registry, but here's the number one reason: my father. Ten years ago, he was diagnosed with Parkinson's disease. I want to help find a cure and participating in this project gives me the greatest opportunity to do just that.

Angela DanielsBrain Health Registry Participant

My college roommate was recently diagnosed with Parkinson's. She's working hard - exercising, meditating, doing yoga - to keep her symptoms at bay, and she's holding on to the positive attitude she's always had. I'm hoping this research can lead to a cure and help her stay positive and vital. That’s why I’m here.

Anne de la RosaBrain Health Registry Participant

It’s easy to join!

(You must be 18 years or older)

1. Sign Up

You can join as an individual or with a partner.

2. Tell Us About Yourself

Answer some questions about your medical history, current health, and lifestyle.

3. Do Some Online Brain Tests

These tests exercise your memory, and are like games.